FDA-filed SPL labeling · retrieved through openFDA

Pegvaliase-pqpz Injection

Pegvaliase-pqpz (Palynziq) is an enzyme therapy given by subcutaneous injection to lower blood phenylalanine levels in adults and adolescents with phenylketonuria (PKU) whose phenylalanine remains poorly controlled on other treatments.

Brand name Palynziq
Drug class Phenylalanine Metabolizing Enzyme
Rx Form 1 Route Subcutaneous
Dr. Brian Staiger, PharmD, BCPS
Reviewed by Last reviewed Jul 10, 2026
🧬 Where this information comes from Click to expand

The clinical label records used on this page are FDA-filed Structured Product Labeling (SPL) retrieved through openFDA. We identified 1 clinical label set within the page’s selected clinical scope after exact ingredient or ingredient-combination matching and applicable route/form matching. Forms, routes, brands, labelers, strengths, and NDC product-record counts are built separately from matching FDA National Drug Code Directory records. The linked DailyMed document is a representative official source for verification, not the page’s only clinical source. View the linked label on DailyMed →

At a glance
Linked label effectiveMar 2, 2026
AvailabilityRx
Earliest approval/marketing year 2018
FDA-listed product records 11
Boxed warningYes
How we combine label and product data →
No current FDA shortage listed · checked Sep 23, 2026
Pegvaliase-pqpz Injection at a glance The quick version — the full detail is in the Patient Information Guide below.
💊
HelloPharmacist Editorial Team Bottom Line
Palynziq (pegvaliase-pqpz) is an effective enzyme therapy for lowering dangerously high phenylalanine levels in adults and adolescents with PKU who haven't responded adequately to other treatments. It carries a serious risk of anaphylaxis, so you must always carry epinephrine and be enrolled in the required safety program. When used carefully with regular blood monitoring and dietary management, it can significantly reduce phenylalanine levels and improve PKU control.
⚠️ FDA Boxed Warning — the FDA’s strongest safety alert

Palynziq carries a boxed warning — the FDA's most serious safety alert — for anaphylaxis (a sudden, severe, potentially life-threatening allergic reaction). This reaction has been reported in patients taking Palynziq and can happen at any point during treatment — even after months or years on the medicine. Most reactions occur within an hour of the injection, but delayed reactions up to 48 hours later have also been reported.

Because of this risk: your first dose must be given in a healthcare setting equipped to treat anaphylaxis, and you must be watched for at least 60 minutes. Before self-injecting at home, you and anyone who may be with you must learn to recognize anaphylaxis symptoms and know how to use epinephrine. You must carry epinephrine at all times. Palynziq is only available through a restricted safety program called the Palynziq REMS. Warning signs of anaphylaxis include: throat tightening, difficulty breathing or wheezing, dizziness or fainting, fast heartbeat, face or lip swelling, and severe hives or flushing.

Read the full warning on DailyMed →

📖 Pegvaliase-pqpz Injection: Patient Information Guide

A plain-language walkthrough of Pegvaliase-pqpz Injection — what it treats, how it works, how it’s taken, side effects, warnings and interactions. Tap any section to expand it.

🎯What it's used for

Pegvaliase-pqpz is an enzyme therapy used to lower blood phenylalanine levels in people with phenylketonuria (PKU) who aren't adequately controlled on other treatments.

  • Palynziq (subcutaneous injection) is approved to reduce blood phenylalanine concentrations in adults and pediatric patients 12 years of age and older with PKU whose blood phenylalanine levels remain greater than 600 micromol/L despite existing management.
⚙️How it works

In PKU, the body lacks a working version of the enzyme phenylalanine hydroxylase (PAH), so phenylalanine builds up to toxic levels in the blood. Pegvaliase-pqpz is a different enzyme — a PEGylated phenylalanine ammonia lyase (PAL) — that acts as a substitute. It converts phenylalanine into two harmless byproducts (ammonia and trans-cinnamic acid), reducing the dangerous buildup. The PEG (polyethylene glycol) coating helps the enzyme survive longer in the body and reach effective concentrations.

Because the immune system recognizes the enzyme as foreign, virtually all patients develop antibodies to it. These antibodies can affect how much drug stays in the blood and contribute to allergic-type reactions — which is why careful dose escalation and close monitoring are essential throughout treatment.

💊How it's taken

Palynziq is given as a once-daily (or less frequent, during early treatment) subcutaneous injection. Treatment follows a structured three-phase approach: induction (starting at a very low dose once weekly), titration (gradually increasing over at least several weeks), and maintenance (a stable once-daily dose). The dose is adjusted based on blood phenylalanine levels and how well each person tolerates the medicine.

  • The first dose must always be given under healthcare provider supervision.
  • Blood phenylalanine is checked every 4 weeks until a stable maintenance dose is established, and periodically after that.
  • If a dose is missed, take the next dose as scheduled — never double up.
  • Dietary protein and phenylalanine intake should be monitored and adjusted throughout treatment by your care team.
🤒Side effects — in detail

Most people experience some side effects, especially during the early dose-escalation phase. Common ones include:

  • Injection site reactions (redness, pain, swelling, itching, bruising)
  • Joint and muscle pain (arthralgia, back pain, pain in the limbs)
  • Hypersensitivity reactions (rash, hives, generalized itching)
  • Headache
  • Nausea, vomiting, abdominal pain, diarrhea
  • Fatigue and dizziness
  • Cough, sore throat, nasal congestion
  • Anxiety
  • Hair loss (alopecia) — reported in some patients during maintenance

Side effects tend to be most frequent during the induction and titration phases and generally decrease over time. Serious reactions — including anaphylaxis and significant injection site infections — require immediate medical attention.

⚠️Warnings & precautions
  • Anaphylaxis (severe allergic reaction): This is the biggest risk. It occurred in about 10% of patients in clinical trials and can happen at any time — even years into treatment. Always carry epinephrine. Know the signs: throat tightening, trouble breathing, fast heartbeat, fainting, severe swelling. Get emergency help immediately if this happens.
  • PALYNZIQ REMS program: Because of the anaphylaxis risk, Palynziq is only available through a restricted safety program. Both prescribers and pharmacies must be enrolled. Patients must be educated about the risks before starting.
  • Other hypersensitivity reactions: Rashes, hives, and joint pain related to immune reactions occurred in about 72% of patients. Management depends on how severe and how often they occur.
  • Serious injection site infections: Abscess, cellulitis, tissue damage, and ulcers have been reported, some requiring hospitalization. Use proper sterile technique; report any signs of infection promptly.
  • Hypophenylalaninemia (phenylalanine dropping too low): Phenylalanine is still needed by the body. If levels fall too low, the dose may need to be reduced or dietary intake adjusted. This is especially important during pregnancy.
🔀What it interacts with

There is currently one key drug interaction identified for Palynziq to be aware of:

  • Other PEGylated medicines (drugs containing polyethylene glycol, such as certain injectable contraceptives like medroxyprogesterone acetate suspension): Because Palynziq causes the body to make antibodies against PEG, using other PEG-containing medications at the same time can trigger serious hypersensitivity reactions, including anaphylaxis. Tell your doctor and pharmacist about every medicine you take, including injections and contraceptives.

This is not a complete list of interactions. Always talk with your doctor or pharmacist before starting, stopping, or changing any medication.

📋Before taking it
  • Pregnancy: Uncontrolled phenylalanine during pregnancy is linked to miscarriage, serious birth defects, and intellectual disability in the baby. If you are pregnant or planning to become pregnant, discuss the risks and benefits carefully with your doctor — phenylalanine levels must be tightly monitored throughout pregnancy.
  • Breastfeeding: It is not known how much pegvaliase-pqpz passes into human milk or how it affects a breastfed baby. Palynziq may lower phenylalanine levels in breast milk. Discuss breastfeeding with your doctor before starting or continuing Palynziq.
  • Age under 12: Palynziq's safety and effectiveness have not been established in children under 12 years of age.
  • Epinephrine requirement: You must have epinephrine prescribed and available at all times before starting Palynziq.
  • REMS enrollment: You must be enrolled in the Palynziq REMS program before receiving this medicine.
  • PEGylated drug use: Tell your doctor if you use any other injectable medicine that contains polyethylene glycol (PEG), as the combination may increase your allergy risk.
📡Pharmacodynamics — effects in the body

Palynziq works by breaking down phenylalanine in the blood, and blood phenylalanine levels fall as drug levels increase during treatment. When drug levels in the blood drop — for example, due to immune-related clearance — phenylalanine levels tend to rise again. As a byproduct of the enzyme's action, ammonia and trans-cinnamic acid levels in the blood also increase during treatment, though the long-term significance of these changes has not been fully established.

🔬Pharmacokinetics — how your body processes it

After subcutaneous injection, pegvaliase-pqpz reaches peak blood levels in about 8 hours. Drug levels vary considerably from person to person — and even in the same person over time — because each patient's immune response is different; higher antibody levels cause the drug to be cleared from the body faster. The drug's half-life (the time for blood levels to fall by half) averages roughly 47–60 hours during maintenance, but varies widely. During the first 8 weeks of treatment, blood levels are often very low or undetectable. The drug is expected to be broken down into small peptides and amino acids, as enzymes typically are.

📦How to store it

Store in refrigerator at 36°F to 46°F (2°C to 8°C) in its original carton to protect from light. Do not freeze or shake. store PALYNZIQ in the original carton at room temperature between 68°F to 77°F (20°C to 25°C) for up to 30 days.

📄 Written from Pegvaliase-pqpz Injection’s FDA-approved label information, summarized in plain language with AI, and reviewed by our pharmacy team before publication. Every point is grounded in that labeling — nothing is invented. How we use AI →

🩺 Pharmacist Counseling Corner

Quick, plain-English answers to the questions patients ask most about Pegvaliase-pqpz Injection — the kind of thing our pharmacy team would talk through with you at the counter.

Why do I have to enroll in a special program just to get this medication?
Palynziq can cause a rare but life-threatening allergic reaction called anaphylaxis, so the FDA requires that it only be available through a tightly controlled safety program called the PALYNZIQ REMS. This program makes sure your prescriber is trained to manage severe reactions, that you're educated about the risks, and that epinephrine is prescribed to you before your very first dose. It's a real safeguard, not just red tape.
What does anaphylaxis actually look and feel like, and what should I do if it happens?
Anaphylaxis can feel like your throat suddenly tightening, trouble breathing or wheezing, your heart racing, feeling faint or dizzy, or severe swelling of your face and lips. It usually happens within an hour of the injection, but it can also occur hours later. If you notice any of those signs, use your epinephrine auto-injector immediately and call 911 — don't wait to see if it improves on its own. This is why you must carry epinephrine with you at all times.
The joint pain is really bothering me — is that normal, and will it get better?
Yes, joint and muscle pain (called arthralgia) is one of the most common side effects — more than three-quarters of patients in clinical trials experienced it. The good news is it tends to be most intense during the early weeks of dose escalation and often improves over time as your body adjusts to the medication. If it's severe or making it hard to function, let your doctor know — a temporary dose adjustment may help.
I'm a woman of childbearing age. Is it safe to take Palynziq if I want to get pregnant?
This is a really important conversation to have with your doctor before trying to conceive. Uncontrolled PKU during pregnancy can cause serious harm to your baby, including birth defects and developmental problems. Palynziq can help bring your phenylalanine down to safer levels, but your levels need to be carefully monitored throughout pregnancy. Animal studies did show risks at high doses, so the goal is to keep your phenylalanine in a safe range — not too high and not too low — throughout the whole pregnancy.
I take a birth control shot — is that okay to use with Palynziq?
This is something to bring up with your doctor right away. Some injectable contraceptives contain a substance called polyethylene glycol (PEG), and Palynziq causes your immune system to make antibodies against PEG. That combination has been linked to hypersensitivity reactions, including one case of anaphylaxis, in clinical trial patients. Your doctor can help you find a contraceptive option that's safe to use alongside Palynziq.
How long will it take before I start to see my phenylalanine levels go down?
It takes patience. During the first several weeks of induction and dose escalation, blood levels of the drug are often very low, and meaningful phenylalanine reduction may not show up right away. It can take many months of careful dose adjustment to reach an effective maintenance dose. Your care team will check your blood phenylalanine every 4 weeks until your dose is stable. If you haven't responded adequately after 16 weeks at the maximum dose, your doctor will reassess whether to continue.
Is Pegvaliase-pqpz Injection available over the counter?
Pegvaliase-pqpz Injection is dispensed by prescription according to its FDA labeling, so it isn't sold over the counter. Your prescriber and pharmacist will determine if it's appropriate for you.
When was Pegvaliase-pqpz Injection first available?
Pegvaliase-pqpz Injection has been available in the United States since at least 2018, based on FDA approval history (Drugs@FDA) and product marketing records.

💬 Answers drafted from Pegvaliase-pqpz Injection’s FDA-approved label information, summarized in plain language with AI, and reviewed by our pharmacy team before publication. Grounded in that labeling — nothing is made up. How we use AI →

🧰 Keep exploring

💊 How Pegvaliase-pqpz Injection comes

Pegvaliase-pqpz Injection is available in 1 form. Different forms and brands can have different approved uses, doses, schedules, and directions. Follow the instructions for your exact product, and do not switch forms without guidance from your prescriber or pharmacist.

Injection

By injection · Under the skin
Brands Palynziq
How this form is used
What it may be used for
  • Palynziq is used subcutaneously to reduce blood phenylalanine concentrations in adults and patients 12 years and older with PKU whose levels remain above 600 micromol/L on existing management
  • Palynziq treatment is started at a low once-weekly dose and gradually increased over weeks to a once-daily maintenance dose
Important instructions
  • Palynziq is injected under the skin (subcutaneously) into the front of the thigh or abdomen (at least 2 inches from the navel); a caregiver may also use the upper buttocks or back of the upper arms
  • Palynziq prefilled syringes are single-use only — inspect for particles or discoloration before use and discard if the solution looks cloudy or unusual
  • Rotate Palynziq injection sites with each dose; if more than one injection is needed for a single dose, keep the sites at least 2 inches apart
  • Do not inject Palynziq into skin that is red, irritated, infected, scarred, tattooed, or otherwise damaged
Available strengths 4 strengths
11 FDA-listed product records

📊 Pegvaliase-pqpz Injection across the U.S. market

How Pegvaliase-pqpz Injection appears in the FDA’s National Drug Code Directory — including its dosage forms, strengths, brand names, manufacturers, and FDA-listed product records. These are directory records, not sales or prescription volume.

1
Dose forms
1
Manufacturers
1
Brand names
11
FDA-listed product records
2018
First marketed

📈 How widely Pegvaliase-pqpz Injection is used

A general measure of how commonly Pegvaliase-pqpz Injection is prescribed, based on Medicaid — one of the largest public drug programs. The figure below is prescriptions filled in Q1–Q4 2025, summed across every form and brand of the drug.

Think of this as a proxy for how widely Pegvaliase-pqpz Injection is used, drawn from freely available public data. Medicaid is just one program — these numbers don’t include Medicare, other government coverage, or commercial and cash-pay prescriptions, so real-world use is higher than what’s shown here.

767
Medicaid prescriptions filled (Q1–Q4 2025)
$20.6M gross Medicaid reimbursement (before mandatory rebates — net cost is lower)

How commonly is Pegvaliase-pqpz Injection prescribed? Of the 1,596 medications we measure, Pegvaliase-pqpz Injection ranks #1,318 by Medicaid prescriptions — more than 17% of them.

Where Pegvaliase-pqpz Injection ranks among the drugs we measure · Q1–Q4 2025 · neighbors ±5

Utilization by Pegvaliase-pqpz Injection product

Pick a product to see its own Medicaid numbers. Each chip is one clinical product — a specific strength & dosage form as defined by RxNorm — with brand-name and generic versions combined.

The 1 mL / 20 mg/mL prefilled syringe is the most-dispensed Pegvaliase-pqpz Injection product — about 91% of these Medicaid prescriptions.

1 ML pegvaliase-pqpz 20 MG/ML Prefilled Syringe Most dispensed

696 Medicaid prescriptions (Q1–Q4 2025) 91% of Pegvaliase-pqpz Injection prescriptions shown $19.5M gross reimbursement (before rebates) ≈ $28,085 per prescription (gross)

Summed across the 2 of 3 listed NDC products with Medicaid activity — every brand and generic of this exact strength & form. RxNorm 2046379

0.5 ML pegvaliase-pqpz 20 MG/ML Prefilled Syringe

71 Medicaid prescriptions (Q1–Q4 2025) 9% of Pegvaliase-pqpz Injection prescriptions shown $1.1M gross reimbursement (before rebates) ≈ $14,797 per prescription (gross)

Summed across the 1 of 2 listed NDC products with Medicaid activity — every brand and generic of this exact strength & form. RxNorm 2046365

Shares are of the Medicaid prescriptions shown here. Product grouping follows RxNorm (the National Library of Medicine’s drug terminology), so “one product” means one strength & dosage form regardless of manufacturer. Dollar figures are gross Medicaid reimbursement before mandatory rebates — rebates (often large, especially for brand-name drugs) are confidential, so actual net cost to Medicaid is lower than shown.

Source: Medicaid State Drug Utilization Data (CMS), aggregated by generic ingredient — summed across every NDC (all brands, strengths, salt forms and dosage forms) of Pegvaliase-pqpz Injection, and across all states and both fee-for-service and managed-care claims. A general popularity signal; it excludes Medicare, commercial insurance and cash prescriptions, so it is not total U.S. use. Based on the 3 of 5 listed Pegvaliase-pqpz Injection NDCs with Medicaid activity.

🔍 Compare Pegvaliase-pqpz Injection products

A representative set of FDA-listed product records for Pegvaliase-pqpz Injection — across manufacturers, strengths, and dosage forms, grouped by form with each product’s manufacturer and how the FDA approved it. The same medicine may be made and packaged by different companies, so a single drug can have many directory entries. (It’s also why a refill can look different — a new shape, color, or box — even though it contains the same medication.)

Strength Route Manufacturer / Labeler Category Details
💊Injection
2.5 mg/0.5 mL Subcutaneous BioMarin Pharmaceutical Inc. × 3 listings BLA View NDC →
5 mg/mL BioMarin Pharmaceutical Inc. DRUG FOR FURTHER PROCESSING View NDC →
10 mg/0.5 mL Subcutaneous BioMarin Pharmaceutical Inc. × 3 listings BLA View NDC →
20 mg/mL BioMarin Pharmaceutical Inc. DRUG FOR FURTHER PROCESSING View NDC →
20 mg/mL Subcutaneous BioMarin Pharmaceutical Inc. × 3 listings BLA View NDC →

Showing 11 of 11 products — FDA National Drug Code Directory. See every product, package size and price: browse all 11 Pegvaliase-pqpz Injection NDCs →

RxNorm Concept Web — From Ingredient to Every Form and Strength

This page starts with one ingredient concept (IN). The branches below show its dose-form concepts (SCDF), then the available clinical drug and strength concepts (SCD). Combination products remain separate concepts with their own pages.

Ingredient (IN) Pegvaliase-pqpz Injection RxCUI 2046360 1 dose form · 3 strengths

Look up RxCUI 2046360 in the RxCUI Atlas →

RxNorm is the U.S. National Library of Medicine’s normalized drug vocabulary. Its concept hierarchy can include forms that are not currently marketed; the status on each branch compares that concept with current FDA listings. RxCUIs identify vocabulary concepts, not individual packages or manufacturers.

🏷️ Sold under these brand names

Palynziq

🏭 Manufacturers & labelers

BioMarin Pharmaceutical Inc. 11

RxNorm drug class

Pegvaliase-pqpz Injection belongs to the Phenylalanine Metabolizing Enzyme class.

Pharmacologic class Phenylalanine Metabolizing Enzyme
Drug family (ATC) Enzymes

Classified by RxNorm RxClass — the U.S. National Library of Medicine's standardized drug-classification service (Established Pharmacologic Class from the FDA, the ATC drug family from the WHO, and mechanism of action). Reference only, not medical advice.

🔬 Where this comes from

Core label, product, RxNorm, safety, and utilization data on this page come from the sources identified below. AI-written, editorial, and licensed sections are labeled separately.

📄
FDA-filed drug labels (SPL) Uses, dosing, warnings & side effects from SPL records retrieved through openFDA; the linked representative set can be verified on DailyMed. ✓ Linked label effective Mar 2, 2026
🏭
Forms, brands & labelersAggregated from ingredient-matched FDA National Drug Code Directory product records for Pegvaliase-pqpz Injection.
📈
Real-world reportsThe FDA Adverse Event Reporting System (FAERS), served through openFDA.
🚨
Recalls & shortagesopenFDA drug-enforcement reports and the FDA drug-shortage database.
🧾 Clinical label set — FDA-filed SPL labels retained for Pegvaliase-pqpz Injection after exact ingredient or ingredient-combination matching and applicable route/form matching
Clinical labels in scope
1
NDC products indexed
11
Distinct labelers/manufacturers represented
1
Linked representative label
BioMarin Pharmaceutical Inc.
Linked label effective
Mar 2, 2026
Composite sections available
24
Linked SPL Set ID
6dba844a-db02-44f8-8593-ce497ed9406c
Linked SPL Document ID
b7b7caec-2808-4d88-ae34-1129a2cb1aef
Open the linked representative label on DailyMed ↗

How we combine label and product data

HelloPharmacist combines public FDA and NLM records; we don’t author the underlying clinical facts. We identified 1 FDA-filed SPL label set within the page’s selected clinical scope after exact ingredient or ingredient-combination matching and applicable route/form matching. The representative label is the starting point for the displayed reference monograph; the 12 largest stored in-scope SPL records, which may include that representative, are compared section by section, and the longest available version of each section is retained. Forms, routes, brands, labelers, product-listed strengths, and product-record counts are aggregated separately from ingredient-matched FDA NDC Directory records; package records listed above are associated with the linked SPL; and the normalized concept hierarchy comes from NLM RxNorm.

Where a section is identified as AI-written, its plain-language text is generated from bounded label evidence. New draft drug pages remain in the admin review queue before first publication. BioMarin Pharmaceutical Inc. is the representative DailyMed label linked for verification and dates; it is not the sole source used for the page.

This is general education, not medical advice — always consult your doctor or pharmacist about your medications and any medical condition. For the exact wording of the linked representative label, view that label on DailyMed; some displayed composite sections may come from other in-scope SPL labels. Learn how we use AI and our data sources & update cadence.